Current and recent grants
Advance Care Planning
Planning Advance Care Together (PACT) to Improve Engagement in Advance Care Planning among Advanced Cancer Patients
Principal Investigator: Megan Shen, PhD
Funder and Mechanism: NIH/National Cancer Institute R37
Alzheimer's Disease and Related Dementias
Decision-Making Regarding Mechanical Ventilation in Adults with Dementia
Principal Investigator: Lauren Pollack, MD, MS
Funder and Mechanism: Alzheimer's Association Clinician Scientist Fellowship
Understanding Barriers to Goal-Concordant Care for Older Adults with Serious Illness in the Pre-Hospital Setting during Emergency Response Call-Outs: A Multi-Site Qualitative Study
Principal Investigators: Lauren Pollack, MD, MS and Elizabeth Dzeng, PhD, MD, MPH
Funder and Mechanism: NIH/Research Centers Collaborative Network of the National Institute on Aging
Equity in Palliative Care
Racial Inequities in End-of-Life Healthcare: How Perceived Discrimination Affects Communication and Decision-Making During Serious Illness
Principal Investigator: Crystal Brown, MD, MA
Funder and Mechanism: NIH/National Institute on Minority Health and Health Disparities K23
Restorative Processes for Medical Racism: Fostering Accountability and Relational Repair
Principal Investigator: Crystal Brown, MD, MA
Funder and Mechanism: The Greenwall Foundation Making a Difference Grant
Understanding and Improving Inequities in Palliative Care for Older Adults with Advanced Dementia and Limited-English Proficiency: A Mixed-Methods Evaluation
Principal Investigator: Rashmi K. Sharma, MD, MHS
Funder and Mechanism: NIH/National Institute on Aging R01
Care Inequities in Advanced Cancer and Limited English Proficiency
Principal Investigator: Rashmi K. Sharma, MD, MHS
Funder and Mechanism: American Cancer Society Research Scholar Grant
Financial Hardship after Critical Illness
Improving Patient- and Family-Centered Outcomes and Value of Care for Patients with Chronic Illness who Develop Acute Respiratory Failure
Principal Investigator: Nita Khandelwal, MD, MS
Funder and Mechanism: NIH/National Heart, Lung, and Blood Institute K23
Financial Hardship among Patients with Acute Respiratory Failure and their Family Member Caregivers: Understanding the Impact on Patient- and Family-Centered Outcomes
Principal Investigator: Nita Khandelwal, MD, MS
Funder and Mechanism: NIH/National Heart, Lung, and Blood Institute R01
Heart Failure and Congenital Heart Disease
Implementation and Sustainment of Team-Based Practice Transformation to Improve Heart Failure Care and Outcomes
Principal Investigator: Erin Blakeney, PhD, RN
Funder and Mechanism: NIH/National Heart, Lung, and Blood Institute K23
Assessing and Promoting Resilience in Adults with Congenital Heart Disease
Principal Investigator: Jill Steiner, MD, MS
Funder and Mechanism: NIH/National Heart, Lung, and Blood Institute K23
ICU Communication and Outcomes
Unplanned ICU Admissions: Understanding Mechanisms and Identifying Associations with Patient- and Family-Centered Outcomes
Principal Investigator: Ann Jennerich, MD, MS
Funder and Mechanism: NIH/National Heart, Lung, and Blood Institute R01
Improving Goals-of-Care Discussions for Patients with Chronic Life-Limiting Illness and Acute Respiratory Failure
Principal Investigator: Robert Y. Lee, MD, MS
Funder and Mechanism: NIH/National Heart, Lung, and Blood Institute K23
Neuropalliative Care
A Novel Photo-Narrative Communication Intervention Among Parents of Children with Severe Neurological Impairment in the ICU
Principal Investigator: Jori Bogetz, MD
Funder and Mechanism: NIH/Eunice Kennedy Shriver National Institute of Child Health and Human Development K23
Longitudinal Transdisciplinary Neuropalliative Care Support for Patients with Severe Stroke and their Families
Principal Investigator: Claire Creutzfeldt, MD
Funder and Mechanism: NIH/National Institute on Aging R56
Comprehensive Outcome Assessment after Severe Acute Brain Injury: Advanced Symptoms and End-of-Life Care
Principal Investigators: Claire Creutzfeldt, MD and Darin Zahuranec, MD, MS
Funder and Mechanism: NIH/National Institute of Nursing Research R01
Randomized Trials of Communication Interventions
Evaluating Effectiveness of a Communication Facilitator to Reduce Distress and Improve Goal Concordant Care for Critically Ill Patients and Their Families: A Randomized Trial
Principal Investigators: J. Randall Curtis, MD, MPH, Ruth A. Engelberg, PhD, and Claire Creutzfeldt, MD
Funder and Mechanism: NIH/National Institute of Nursing Research R01
Using the Electronic Health Record to Identify and Promote Goals-of-Care Communication for Older Patients with Serious Illness
Principal Investigators: J. Randall Curtis, MD, MPH, Ruth A. Engelberg, PhD, and Erin Kross, MD
Funder and Mechanism: NIH/National Institute on Aging R01
Hybrid Efficacy-Effectiveness Trial to Promote Goals-of-Care Discussions for Patients with Alzheimer's Disease and Related Dementias and their Family Caregivers
Principal Investigator: Erin Kross, MD
Funder and Mechanism: NIH/National Institute on Aging R01
Specialty Palliative Care Utilization
Palliative Care Utilization and Needs Assessment for Patients on Extracorporeal Membrane Oxygenation and their Families
Principal Investigator: Whitney Kiker, MD, MS (Mentors: Erin Kross, MD and Claire Creutzfeldt, MD)
Funder and Mechanism: NIH/National Heart, Lung, and Blood Institute F32
Recent publication spotlight
Dr. Claire Creutzfeldt is senior author of Palliative care in the neurocritical care unit: Increasing primary palliative care skills in Neurocritical Care.
Dr. Nita Khandelwal is the lead author of Risk factors and consequences of financial hardship among family of critically ill patients in the Annals of the American Thoracic Society. CPCCE co-authors include Lois Downey, Clare Pytel, Elizabeth Nielsen, and Ruth Engelberg.
Dr. Jill Steiner is lead author and Dr. Lyn Brumback is co-author of A randomized trial of a resilience-building intervention in adult outpatients with congenital heart disease: feasibility and efficacy in JACC: Advances.
Dr. Lauren Pollack is the lead author of Communication Surrounding Treatment Preferences for Older Adults With Dementia During Emergency Medical Services Response. Co-authors include Danae Dotolo, Whitney Kiker, and Erin Kross.
Dr. Whitney Kiker is the lead author of Outcomes of palliative care in extracorporeal life support: A systematic review in the Journal of Pain and Symptom Management. Co-authors include Erin Kross, Lauren Pollack and Ann Jennerich.
Drs. Ann Jennerich is senior author and Lyn Brumback is co-author of Utilization of the No One Dies Alone Program to support dying patients in the Journal of Pain and Symptom Management.
Dr. Robert (Bob) Lee is the lead author of A modular pipeline for natural language processing-screened human abstraction of a pragmatic trial outcome from electronic health records in medRxiv [preprint]. Co-authors include Erin Kross, Elizabeth Nielsen, Anna Ungar, Jessica Walsh and Danae Dotolo.
Dr. Jori Bogetz is the lead author of A photo-narrative intervention for children with severe neurological impairment in the PICU in the Journal of Pain and Symptom Management. Amy Trowbridge is a co-author.
Dr. Bob Lee is lead author and Erin Kross is senior author of Assessment of a zero-shot large language model in measuring documented goals-of-care discussions in the Journal of Pain and Symptom Management. Co-authors include Kevin Li, Trevor Cohen, Bill Lober, and Danae Dotolo.
Link here to see more publications from our researchers.
Programs & collaborators
Learn more about CPCCE research programs and our collaborators.
Jumpstart Program (Kross and Dotolo)
Treuman Katz Center for Pediatric Bioethics and Palliative Care
UW Alzheimer's Disease Research Center
UW Palliative and End-of-Life Care Research Program